More for my HG Sisters

Here’s a glimpse at how I did things with my first pregnancy, when I was infusing manually (second pregnancy I had a continuous pump/cassette infusion of everything, and much higher doses/more fluids).

The pharmacy calls me and sees what refills I need.  I keep a list in the home care binder with all things I could possibly need {1}.  I have the list ready before they call so I can just give them what and how much I need.  Then the pharmacy delivery truck comes and brings me one or two giant bags of stuff. (Zofran and Phenergan vials are on ice in the summer).

The delivery man carries it into the bedroom for me because the fluids make it ridiculously heavy.  I keep all the supplies there because it's most commonly where I use it; however, I have a tiny travel purse stocked each day with enough supplies for 5 Zofran infusions, so it's never more than an arm's reach away and I have it with me wherever I go.  It's also where I keep the official PICC card (alerts health care professionals of the PICC and its details).

I keep all the supplies organized in a little 3-drawer Rubbermaid unit.

The top drawer has the stuff I use every day (flushes, medicine vials, preps, red caps, syringes).  

The second drawer has refills and less frequently used supplies (site change kits, IV tubing, back-up valves).  

The bottom drawer contains the fluid drips for each night.

It's all situated next to my nightstand, which has a bedside container with things necessary at or during the night.

1- Bookmark with St. Gerard and the prayer for Mothers in Need
2- Tums! Not that I can hold them down all the time, but it helps things not burn so much.
3- Holy Water
4- Lotion - My skin is crazy-dry from repeated handwashing.
5- Rosary Beads
6- Hand Sanitizer (witch hazel + thyme)
7- Refined coconut oil (not to avoid stretch marks, because I know that's impossible--  It simply helps my itchy stretching skin; the refined part is so it is unscented).
8- Ziploc Bag - I use it as a mini trash receptacle during the night because each bathroom trip means disconnecting and re-alcohol swabbing as well as the flush after the drip finishes in the morning.
9- Nighttime stretchy gauze. I keep one specifically for use at night because it's longer and I like to keep the tubes covered more at night.  I don't like the idea of the extension tubing pulling while I sleep.
10- One Saline Flush for use in the morning after the infusion is complete.
11- Fan Remote
12- Alcohol Preps
13- Gripper Fabric- because sometimes the IV valve and my PICC valve form a crazy tight seal.
14- Red Cap- I don't stock one on day 3 of the tubing to remind myself that the tubing will be changed the next day.

Speaking of keeping track of the tubing day, I keep 3 laminated tags on the pump unit and switch them when I hook up my fluids to keep track of what day I'm on. {2}
(Note that since it's day 3, there is no red cap on the IV tubing)

 And it all comes together like so:

 -Dextrose drip
-IV Vitamins
-Saline Flushes
-Alcohol Preps
-Red Caps
-IV Tubing
-Site Change Kit
-Extension Tubing (20 in.)

{2}- If you are someone who also receives 1 Liter per night, here are some extra tidbits: I really don't like letting air in the line go into me,  so I adjust the VTBI (Volume to be Infused) each night.  In order not to have to re-prime, I account for the fluids in the tubing like so: Day 1 I tell the pump VTBI is 985 mL, Day 2 is 1010-1015 mL (I can tell how much by looking at it), and Day 3 is 1020 mL.
 If air does get in the line, here is my trick to clearing it without having to re-prime:  I first connect the tubing to the new bag of fluids.  I release the tubing from the pump and place the clamp just below the air in the line.  Then I simply wrap the airy tubing around an empty flush tube to force the air back up into the bag and the vacuum sucks the fluid down.  It works like a charm and I can get it so I don't have any air go in me.  


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